IN MY OPINION

Tick borne Bartonella

IN MY OPINION, These following pages are not by me at Through Challenge. But are from knowledgeable Tick-Borne sources that I trust. I feel this is a larger part of why so many do not completely get better after Lyme treatment. There are other co-infections that I watch. But this is concentrated on Bartonella. We must remember that Bartonella does not need to be a co-infection of Lyme. It can also be the lead infection just as Babesiosis and a host of other tick-borne related diseases. We have come a long way from the single disease theory of Lyme or any other Tick-borne diseases. These findings in my mind come from Tick-borne diseases minds that have been thrust into studying, experiencing, clinically diagnosing, and sharing Tick-borne diseases knowledge. All being great players (often) outside/inside the IDSA/CDC-driven and controlled outdated program. IN MY OPINION

David R Thomas – Tick-Borne Diseases Advocate/researcher

PS: I must thank Betty G for sharing this great info with me.

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I thought I would list this as there wasn't a central place for all Bart symptoms.

The first batch below are new based on the work from "The Better Health Guy" working with the Bart Experts.

Bartonella Symptom List from "Unravelling the Mystery of Bartonellosis" from the Townsend Letter - July 2015

Body System:

General: 

·       Fatigue,

·       malaise,

·       chills,

·       sweats,

·       fevers,

·       chronic fatigue,

·       drowsiness,

·       restlessness,

·       poor sleep

Cardiovascular / Circulatory: 

·       uveitis/eye inflammation,

·       myocarditis/heart muscle inflammation,

·       pericarditis/sharp chest pain,

·       hemolytic anemia/through invasion and destruction of RBCs,

·       hypertension,

·       pulmonary embolism/blood clot,

·       systemic vasculitis/arteries/veins inflammation,

·       arrhythmias/heartbeat abnormalcy,

·       ischemic stroke/blood supply to part of the brain is interrupted or reduced,

·       cardiomegaly/enlargement of the heart,

·       heart valve problems,

·       palpitations/irregular heartbeat

·      

Gastrointestinal: 

·       Poor appetite,

·       weight loss,

·       mild sore throat or feeling that one is about to get a sore throat,

·       gastritis/stomach lining inflammation,

·       muscle weakness leading to changes in speeded/strength/coordination of digestive organs,

·       difficulty swallowing, elevated liver function tests (LFT), hepatomegaly/enlargement of the liver,

·       GERD acid reflux,

·       jaundice/yellow skin,

·       gallbladder dysfunction,

·       granulomatous hepatitis in liver,

·       peliosis hepatis/rare vascular of liver,

·       abdominal pain

Head and Neck: 

·       Headaches can be severe or ice pick-like,

·       migraines,

·       vision changes or deficits,

·       blurred vision,

·       double vision,

·       dry eyes,

·       red eyes,

·       conjunctivitis/pink eye,

·       neuro retinitis/ocular inflammation,

·       ocular neovascularization,

·       uveitis/eye inflammation,

·       retinal vasculitis,

·       eye pain,

·       floaters,

·       photophobia/bright lights discomfort,

·       Parinaud’s oculoglandular syndrome/pink eye-like,

·       papilledema (increased pressure in or around the brain),

·       intracranial pressure causes swelling of the part of the optic nerve inside the eye (optic disc),

·       tinnitus/noise in ears,

·       hyperacusis (extreme sensitivity to sounds),

·       cavitations/ holes in the bone that occur at the site of a tooth extraction that doesn't heal properly, creating dead bone,

·       non-healing infections of the jawbone,

·       devitalized teeth (root canal).

Hematological: 

Elevated Vascular endothelial growth factor, VEGF, is a signaling protein that promotes the growth of new blood vessels,

elevated LFTs/Liver function tests,

elevated alkaline phosphatase/protein enzyme,

pancytopenia,

thrombocytopenia/ decreases in all peripheral blood lineages

Immune

·       Immune suppression/not working correctly;

·       weakened immune response/  body recognizes and defends itself against bacteria, viruses, and substances that appear foreign and harmful.

Skin

·        

·       Skin rashes,

·       papules or papulovesicular rash/skin rashes,

·       striae/stretch-mark appearance,

·       acne,

·       crusty scalp,

·       Henoch-Schönlein purpura/purple spots on the skin,

·       bacillary angiomatosis/ is an uncommon disease characterized by neovascular proliferation in the skin or the internal organs (peliosis) due to an infection with Bartonella henselae or Bartonella Quintana,

·       petechiae/ pinpoint, round spots that appear on the skin as a result of bleeding,

·       spider veins,

·       varicose veins/damaged on face/legs,

Lymphatic

·        

·       Splenomegaly/enlargement of the spleen,

·       lymphadenopathy/enlargement of the lymph nodes

Musculoskeletal

·        

·       Fibromyalgia pain/widespread pain,

·       pain in the soles of the feet especially in the morning,

·       ankle pain,

·       rheumatoid arthritis,

·       myositis muscles inflammation,

·       myalgia/  muscle aches and pain which can involve ligaments, tendons and fascia, the soft tissues that connect muscles, bones and organs,

·       systemic lupus erythematosus/ autoimmune disease in which the immune system attacks its own tissues,

·       osteomyelitis/bone swelling,

·       joint pain,

·       knee pain,

·       pain in the chest or sternum,

·       twitching or contractions

·       subcutaneous nodules/ deep-seated lesions in the skin,

·       osteolytic lesions/damaged bone that can occur in people with malignancies/bone destruction,

·       stiff legs,

·       shin bone pain,

·       granulomatous inflammation/tissue reaction following cell injury,

·       Neurological

·        

·       Hallucinations,

·       peripheral neuropathy,

·       polyneuropathy/ peripheral nerve malfunctions,

·       multiple sclerosis-like symptoms,

·       transverse myelitis/spinal cord inflammation,

·       encephalitis/brain inflammation,

·       meningitis/swelling of the protective membranes covering the brain and spinal cord,

·       hyporeflexia or areflexia/below normal or absent reflexes,

·       seizures,

·       crawling sensations,

·       burning sensations in the skin,

·       vibrating or shooting sensations,

·       tremors,

·       cognitive deficit/mental impairment,

·       memory loss,

·       radiculitis/ spinal nerve roots are pinched, compressed, irritated or inflamed as they exit the spinal column,

·       transverse myelitis/spinal cord inflammation,

·       chronic demyelinating polyneuropathy/rare neurological disorder in which there is inflammation of nerve roots and peripheral nerves and destruction of the fatty protective covering myelin sheath. of the nerve fibers,

·       brain fog,

·       temperature dysregulation,

·       hyperesthesia/increase in sensitivity to stimuli

Psychological

·       Irritability,

·       panic disorder,

·       agitation,

·       impulsivity,

·       anxiety,

·       depression,

·       obsessive-compulsive thoughts or behaviors,

·       anger,

·       rage/often termed “Bartonella rage”,

·       combative behavior,

·       suicidal feelings,

·       bipolar disorder/manic depressive/mental,

·       hallucinations,

·       confusion,

·       disorientation,

·       mood swings,

·       antisocial behavior/ actions that harm or lack consideration for the well-being of others. 

·       Bartonella Symptom List from Dr. Kenneth Singleton's book, The Lyme Disease Solution

Common symptoms of bartonellosis include:

___Fatigue often with agitation, unlike Lyme disease, which is more exhaustion;

___Low-grade fevers, especially morning and/or late afternoon, often associated with feelings of "coming down with the flu or a virus";

___Sweats, often morning or late afternoon sometimes at night often described as "thick" or "sticky" in nature;

___Headaches, especially frontal often confused with sinus or on top of the head;

___Eye symptoms including episodes of blurred vision, red eyes, dry eyes;

___Ringing in the ears/tinnitus and sometimes hearing problems, decreased or even increased sensitivity so-called hyperacusis;

·      

___Sore throats recurring;

___Swollen glands especially neck and underarms;

___Anxiety and worry attacks; others perceive as "very anxious";

___Episodes of confusion and disorientation that are usually transient and very scary; often can be seizure-like in nature;

___Poor sleep especially difficulty falling asleep; poor sleep quality;

___Joint pain and stiffness, often both Left and Right sides, as opposed to Lyme which is often on one side only with pain and stiffness that changes locations;

___Muscle pains especially the calves may be twitching and cramping also;

___Foot pain, more in the morning involving the heels or soles of the feet sometimes misdiagnosed as plantar fasciitis;

___Nerve irritation symptoms which can be described as burning, vibrating, numb, shooting, etc.;

___Tremors and/or muscle twitching;

___Heart palpitations and strange chest pains;

___Episodes of breathlessness;

___Strange rashes recurring on the body often, red stretch marks, and peculiar tender lumps and nodules along the sides of the legs or arms, spider veins;

___Gastrointestinal symptoms, abdominal pain and acid reflux;

___Shin bone pain and tenderness;

From Dr. Burrascano's Guidelines:

BARTONELLA & ”BARTONELLA-LIKE ORGANISMS/BLO”

·        

·       Gradual onset of initial illness.

·       CNS/central nervous symptoms are out of proportion to the musculoskeletal ones.

·       If a patient has no or minimal joint

complaints but is severely encephalopathic (see below), then think of Bartonella/BLO.

·        

·       Obvious signs of CNS irritability can include:

·        

·       muscle twitches,

·       tremors,

·       insomnia,

·       seizures,

·       agitation,

·       anxiety,

·       severe mood swings,

·       outbursts and

·       antisocial behavior.

·        

·       GI involvement may present as gastritis or abdominal pain (mesenteric adenitis).

·        

·       Sore soles, especially in the morning.

·       Tender subcutaneous nodules along the extremities, especially outer thigh, shins, and occasionally along the triceps.

·       Occasional lymphadenopathy/lymph node swelling.

·       Morning fevers usually around 99.

·       Occasionally light sweats are noted.

·       Elevated vascular endothelial growth factor (VEGF) occurs in a minority.

·       But the degree of elevation correlates with activity of the infection and may be used to monitor treatment.

·       Rapid response to treatment changes; often symptoms improve within days after antibiotics are begun.

·       But relapses occur also within days if medication is withdrawn early.

·       May have papular or linear red rashes, like stretch marks that do not always follow skin planes especially in those with GI involvement.

·        

·       Indicators of BLO infection include CNS symptoms out of proportion to the other systemic symptoms of chronic Lyme.

·        

·       There seems to be an increased irritability to the CNS with

·       agitation,

·       anxiety,

·       insomnia,

·       and even seizures

·       in addition to other unusually strong symptoms of encephalitis, such as cognitive deficits and confusion.

·        

·       Other key symptoms may include:

·        

·       gastritis,

·       lower abdominal pain/mesenteric adenitis,

·       sore soles especially in the AM,

·       tender subcutaneous nodules along the extremities,

·       and red rashes.

·       These rashes may have the appearance of red streaks like stretch marks that do not follow skin planes, spider veins, or red papular eruptions.

·       Lymph nodes may be enlarged and the throat can be sore.

  Good day all, It is 12/04/2018 I woke up to an update from my friend and eyes and ears to the TBDWG (Tick Borne Disease Working Group). The update struck a response that I am afraid if not taken seriously, will sideline any possible production of the TBDWG as it was meant to be. You can catch Jenna's response and update here as I am publishing this Link with my response. And then my response.

https://l.facebook.com/l.php?u=https%3A%2F%2Fwww.linkedin.com%2Fpulse%2Fbreaking-news-tick-borne-diseases-working-group-over-700-jenna%2F%3Ffbclid%3DIwAR3ycm1wHQQTIuCPe19siWKgMCsiSWwJO_BmyWrs_M-jAQytcW5DjUbRwh4&h=AT3ShU6jJVSEZryUsB_WBfTf5HxotWkJiKxZvxm1vs_7jvwFNAoeKeytuSnGfmGUurpVixso87_czMNbCmE8HJSmkkTKPj-O4t0JA1n7T2tvqq95VGC7cV56cqljhfVm5CqWz8JyHvl-mx9czPQLIqrgcM9J1Tm36g

https://www.amazon.com/Lyme-Medical-Mortally-Corruption-Scientific-ebook/dp/B07HVNN9FG

 I feel the HHS is clearly (federal and State) is still promoting the old guidelines and shunning the new guidelines as the HHS presents the old guidelines as I see it. HHS is in my opinion a ghost to act as an action member when it is only to be used as a trust credit for the TBDWG. I wish the HHS had not been put to this task. As for the transparency issue. I see no real use of the public comments as these publics comments were meant for the first TBDWG processes and will not be of any use to the next TBDWG. I feel strongly that the patient community has been blown off again by the powers that be and the TBDWG has failed their job of building trust, coming to an understanding of the process that is required to bring this devastating economy busting pandemic under control for the world. Not to mention this USA.

Failure as I see this as great minds were brought together only to appease or manipulate the public into a belief that the powers that be are in control of a very disastrous situation. I feel this Working should be seriously looked at and replaced by more appropriate leadership.

David R Thomas

Lyme Disease Advocate

www.throughchallenge.com

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Good morning all.

I woke this morning recovering from a busy day of canning and my thoughts almost immediately went to a vision I had a while back. “ Lyme and tick borne diseases will not be appreciated until it is eradicated.” Much like the supposedly great antibiotics and vaccine discoveries of our time that have depleted in my opinion the very defenses of our immune systems. The Lyme sciences I see starting to swing in many directions are finding possible cures for so many things that have haunted humanity for thousands of years from organ failure, mental illnesses, Heavy metal burden and the list goes on. Realizing the very thing that many people fear for our children will come back on line in our daily routines like playing in the dirt. Our next generation of antibiotics I feel will not be produced in the petre but taken from the dirt we walk on and/or play in when we are children. The mental illness of seniors being discovered that there can be not just and dementia but “Like” diseases caused by environmental issues started back in infancy such as light contamination from infancy to adulthood. There are great discoveries coming from this Lyme epidemic that is making the NON- Literate medical community nervous and I am sure the great power brokers of the Pharmaceutical and political worlds shiver. We are starting to clean up the mess we have created through chasing the dream of long life and start realizing the value of a healthy life. This will then begin to erase many of the hazards and road blocks our medical community is finding today in finding the right answers to our health issues. I am hearing of some progress in the antibiotic field in regards to Tick borne diseases. I am not sure that will help the bigger problem. We need to get back to the basics. I hear a lot about Organic food which is great if you can afford it. can't, but there are things you can do to help better your chances of a healthier life. If you are not doing well or getting answers to questions 1. Why can't I carry a baby full term? 2. Is my Alziemers or Demesia a correct diagnosis or should I talk to a Lyme Literate person before I that diagnosis? Already we are finding that many and dementia and MS, ME patients and many other auto immune issues could very well be Lyme disease or Heavy Metal issues. Most in house specialist and family physicians today are not equipped knowledge wise to decipher all that they do much less try to keep up with all that they do help us with. This is where talking to somebody that knows something about Tick related issues is much healthier than chasing diagnosis after diagnosis. I used to think what the hell did I do to deserve this punishment of Lyme disease and a couple of co-infections I might add. Now I am seeing the Lyme community a journey to rid the world of many diseases that will not be welcome as the population of the world continues to grow. That to will take care of itself in time as the soil depletes its nutrients and the breeding population becomes negative. Lyme Disease as I see it is a correction of some kind and for mankind, we are searching for the balance. “IN MY OPINION” Don't get rid of your Doctor or specialist or Family physician. Educate them, talk to them and if you need info there is lots of it out there from the community. Don't wait until you have this or your child or parent has this. Lyme literacy is here and growing and getting better . “IN MY OPINION”

David R Thomas - Lyme Disease Advocate