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http://www.facebook.com/darith1.lyme

D&L THOMAS

TICK BORNE DISEASE ADVOCATES

                    My Lyme Opinion

I was asked to submit my thoughts on the present Lyme issues. I submited the following. 

Dear Journal,

 

   My cause for better Tick-borne diseases understanding by the medical community and higher education is not filtering through the channels of Big U. learning channels. But is coming from the grassroots fieldwork of Medical professionals that understand, there is something wrong from top-tier learning, down to the medical advisor to the patient. When only the patient has the answers to their own successes or demise. 

 This medical climate through Covid Pandemic has also clouded the importance of Tick disease issues and increased the Lyme and co-infections such as Bartonella, Babesiosis, Anaplasmosis among many others infectious spread by at least 150,000 victims per year in the USA alone. Up from 425,000 annually (This comes from a CDC post recently)

 There will not be a valued medical Tick defense system until all medical professionals, from first responders to specialists of all areas of medicine stop blowing this responsibility off to the next office.  

 We must educate the complete medical system. The best way at this time as I see it is to start listening to the surviving speakers and educators and the Lyme Literate community that is in place at Ilads. ( International Lyme and Associated Diseases Society ) and many very knowledgeable characters fighting for updated Lyme medical practices.

 We must restart learning global Tick disease prevention practices that have been diluted through population growing neglect and medical gaslighting for higher profit-taking and misdiagnosis from/to the patient.

 There are great Lyme prevention programs available in the ready-to-educate world. 

We need to be using this now.

Video version available Herehere. https://studio.youtube.com/video/5hskjb8c1hc/edit

Thank you for your time,

David R Thomas

Lyme advocate and consultant

Through Challenge and Lyme 

www.throughchallenge.com

www.throughchallenge.com

 

THROUGH CHALLENGE and Lyme Disease

Seasons a​re changing 

  Please Read

 Dear friends of A Hope 4 Lyme,

The seasons are changing and with Spring comes the ticks and a renewed awareness of the important role we play in our community. We are looking for people who can bring new ideas and fresh passion to our organization. If you have any interest in sharing your talents and time with A Hope 4 Lyme we would love to hear from you. Please respond to this email if you are interested.

The Board of Directors

Copyright © 2021 A Hope 4 Lyme, All rights reserved.

A Hope 4 Lyme

Our mailing address is:

A Hope 4 Lyme

PO Box 1003

Elmira, Ny 14902

ahope4lyme.org

[email protected]

Blog

Loraine Johnson's response to CDC article

Posted on June 19, 2017 at 7:08 AM

In Response to the CDC's recent published article against the Lyme world From Loraine Johnson -

To All,  Lorraine Johnson posted their response. It was filed by Raphael B Stricker, MD. (see below).  Much appreciation is due to them,Jill ---- read bellow ----Last night Ray filed our pub-commons response to the Christina Nelson MMWR piece, detailing the previous ethics case.  This can now be cited. https://www.ncbi.nlm.nih.gov/pubmed/28617768 Lorraine Johnson, Raphael B. Stricker, MD.Lymedisease.org, PO Box 1352, Chico, CA 95927; ILADS, PO Box 341461, Bethesda, MD 20827The article by Marzec et al. published in MMWR purports to show the dangers of treatment in patients diagnosed with chronic Lyme disease (1). Recent reports from the Centers for Disease Control and Prevention (CDC) indicate that more than 300,000 new cases of Lyme disease are diagnosed each year in the USA (2). The MMWR article from the CDC describes five anecdotal cases of treatment complications in these patients while ignoring the significant morbidity related to denial of treatment for chronic Lyme disease (2,3). The resultant biased report raises scientific and ethical issues about the CDC's role in promoting the best care for patients with tickborne diseases.The MMWR piece resulted from anecdotal reports gathered by Dr. Christina Nelson of the CDC. The article notes that the information was gathered because “clinicians and state health departments periodically contact CDC concerning patients who have acquired serious bacterial infections during treatments for chronic Lyme disease.” However, an ethics complaint filed against Dr. Nelson by the Lyme disease patient advocacy group LymeDisease.org suggests that these adverse event reports were in fact specifically solicited by Dr. Nelson via emails distributed in 2014 (4). Dr. Nelson asked clinicians from the Infectious Diseases Society of America (IDSA) to provide anecdotal evidence of harm to patients from intravenous antibiotic therapy related to Lyme disease, and she apparently offered coauthorship of her article as an incentive to describe these adverse events. She did not ask for consequences of failing to treat these patients, nor did she solicit commentary from practitioners who treat chronic Lyme disease according to the guidelines of the International Lyme and Associated Diseases Society (ILADS).The risk of any medical treatment is extremely context-sensitive. A crucial question is whether the risks of treatment are warranted given the potential benefits, the availability of other treatment options, the severity of the patient's presentation, and the risk tolerance of the individual patient. By asking for an assessment of treatment risks only, Dr. Nelson is framing the issue in a manner that excludes the other half of the equation in a risk/benefit assessment. She is also ignoring an issue that is critical to patients who suffer a profoundly diminished quality of life due to their illness, namely the risk of not treating (5,6). Moreover, by failing to mention that these adverse event reports were rare and specifically solicited, she implies that these rare occurrences are a common concern. In reality, studies of the risks and benefits associated with intravenous antibiotic treatment for Lyme disease indicate that the risks of adverse events are no greater than the risks of intravenous therapy in other unrelated diseases (7,8).By asking the question only of those on one side of the controversy, Dr. Nelson is further demonstrating favoritism and a lack of impartiality on the part of the CDC. Accordingly, Dr. Nelson's solicitation of anecdotal adverse events for case studies of Lyme disease is a highly inappropriate partisan act of favoritism toward the IDSA viewpoint at the expense of critical stakeholders - Lyme disease patients and their treating physicians - and an attack on the ILADS viewpoints. References 1. Marzec NS, Nelson C, Waldron PR, et al. Serious bacterial infections acquired during treatment of patients given a diagnosis of chronic Lyme disease - United States. MMWR Morb Mortal Wkly Rep. 2017 Jun 16;66(23):607-609. 2. Stricker RB, Johnson L. Lyme disease: Call for a ‘‘Manhattan Project’’ to combat the epidemic. PLoS Pathog. 2014;10(1): e1003796. 3. Stricker RB, Fesler MC. Chronic Lyme disease: A working case definition. Chronic Dis Int. 2017; 4(1): 1025. 4. Leland DK. TOUCHED BY LYME: CDC ignores ethics, attacks “chronic Lyme”. Available at https://www.lymedisease.org/touchedbylyme-cdc-ignores-ethics/. Accessed June 16, 2017. 5. Johnson L, Aylward A, Stricker RB. Healthcare access and burden of care for patients with Lyme disease: a large United States survey. Health Policy. 2011;102: 64–71. 6. Johnson L, Wilcox S, Mankoff J, Stricker RB. Severity of chronic Lyme disease compared to other chronic conditions: a quality of life survey. Peer J. 2014;2:e322. 7. Stricker RB, Green CL, Savely VR, Chamallas SN, Johnson L. Safety of intravenous antibiotic therapy in patients referred for treatment of neurologic Lyme disease. Minerva Med. 2010;101:1–7. 8. Stricker RB, Delong AK, Green CL, et al. Benefit of intravenous antibiotic therapy in patients referred for treatment of neurologic Lyme disease. Int J Gen Med. 2011; 4: 639–646.

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