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                    My Lyme Opinion

I was asked to submit my thoughts on the present Lyme issues. I submited the following. 

Dear Journal,


   My cause for better Tick-borne diseases understanding by the medical community and higher education is not filtering through the channels of Big U. learning channels. But is coming from the grassroots fieldwork of Medical professionals that understand, there is something wrong from top-tier learning, down to the medical advisor to the patient. When only the patient has the answers to their own successes or demise. 

 This medical climate through Covid Pandemic has also clouded the importance of Tick disease issues and increased the Lyme and co-infections such as Bartonella, Babesiosis, Anaplasmosis among many others infectious spread by at least 150,000 victims per year in the USA alone. Up from 425,000 annually (This comes from a CDC post recently)

 There will not be a valued medical Tick defense system until all medical professionals, from first responders to specialists of all areas of medicine stop blowing this responsibility off to the next office.  

 We must educate the complete medical system. The best way at this time as I see it is to start listening to the surviving speakers and educators and the Lyme Literate community that is in place at Ilads. ( International Lyme and Associated Diseases Society ) and many very knowledgeable characters fighting for updated Lyme medical practices.

 We must restart learning global Tick disease prevention practices that have been diluted through population growing neglect and medical gaslighting for higher profit-taking and misdiagnosis from/to the patient.

 There are great Lyme prevention programs available in the ready-to-educate world. 

We need to be using this now.

Video version available Herehere.

Thank you for your time,

David R Thomas

Lyme advocate and consultant

Through Challenge and Lyme



Seasons a​re changing 

  Please Read

 Dear friends of A Hope 4 Lyme,

The seasons are changing and with Spring comes the ticks and a renewed awareness of the important role we play in our community. We are looking for people who can bring new ideas and fresh passion to our organization. If you have any interest in sharing your talents and time with A Hope 4 Lyme we would love to hear from you. Please respond to this email if you are interested.

The Board of Directors

Copyright © 2021 A Hope 4 Lyme, All rights reserved.

A Hope 4 Lyme

Our mailing address is:

A Hope 4 Lyme

PO Box 1003

Elmira, Ny 14902

[email protected]



Posted on October 16, 2016 at 3:57 PM
Here is a helpful share from a knowledgable Lyme teacher.

When do people use common sense?
There are times in the Lyme community when people become so accustomed to so many symptoms. Pains will come and go within days. Brain fog and neuropathy come and go within weeks and so many unusual things are experienced.
A lot of folks in Lyme groups will discuss all these things with each other, but when is it time to think that a symptom is ER worthy? Especially when folks in hospitals are so Lyme friendly.
I think what it comes down to is this:
1.      If you can’t breathe
2.      If your heart and chest hurt beyond reason
3.      If one of your limbs turn purple
4.      If pain and numbness of limbs occur without cause
5.      If you black out for no reason
6.      If you have sudden vision changes
7.      If for no reason you cannot walk
8.      Seizures for no reason
9.      Severe headache with numbness following it
10.  Localized severe swelling or limb or joints get hard
Bottom line is if anything occurs that is surprising and different from the symptoms you discuss with your LLMD or LLND then it is time to go to the ER.
It is hard to imagine going to an ER if you have had bad experiences with Doctors, but if you amend your files to reflect the type of treatment you want, (check with a lawyer that is Lyme aware to help with this).
Once a person has Lyme disease, it too easy to think every symptom is sprouting from the Lyme. It may be hard to recall the simpler times when these symptoms were ER worthy. It may be worthwhile to ask your LLMD or LLND what are ER worthy symptoms and a plan for such things so you are prepared for emergencies.
Well, I am off to another adventure. Hope all of your adventures are good!
Christina Murphy

Categories: updates

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