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http://www.facebook.com/darith1.lyme

D&L THOMAS

TICK BORNE DISEASE ADVOCATES

THROUGH CHALLENGE and Lyme Disease

Blog

My CBD Evaluation for Persister Lyme

Posted on May 4, 2017 at 10:47 AM Comments comments (46)
  MY CBD EVALUATION --- I have been using CBD for over a month now for a persister return. I have found that I feel better, it does everything that it says it does. I find it relieves some pain, clears some of my brain fog, my rest is much more restful. As for some that find no results at all. That may happen to some that I have found that respond negatively to just about anything. And the negatives are being totally honest. This is why it is important to try something but not to stick with something because somebody says it will help when it does not. I am amazed at the results of my free CBD results this far. 
  IN MY OPINION - Pure CBD is what it says on bottle. I made it through the depression and anxiety of lyme issues long ago so I am not a real good witness to that aspect of CBD. But I do not experience the high as you would if it had THC (TetraHydroCanabidiol) or High in it. I do feel relaxed I think, The pain from muscle spasm in my back from persistors and pushing myself go away almost immediately. It is very important to hold this CBD under your tongue, I have found. Hold under tongue for 60 to 90 seconds so that it can mainline into your blood stream. The bottle says that 15 drops are the serving size. I would start with a much lower dose such as 4 - 6 drops. I did the 15 drops right of. I am not sure what happened. Maybe did not blend well with heart meds or body was not use to it. But I am sure I experience some anephalactic shock. from the 15 drops. So it is a great idea when trying anything new like this to have Benadryl or in my case, Loratidine on hand. I had been through Anephalactic shock before and thought would die. So be very careful. But I do see some great results from CBD. REMEMBER I am Not a doctor and I do wish for all to be under a good LLMD doctors care. But we Lymee's understand the rest of that argument. IN MY OPINION

VERY MUCH NEEDED

Posted on April 5, 2017 at 11:37 AM Comments comments (3)

To All,
 
Alica Cashman shared the following important information:
 
"Columbia Brain Depository will take your brain.  I made arrangements with my family to contact Columbia upon my death and send them my medical records ASAP.  http://columbia-lyme.org/research/columbia_specimen_bank.html"
 

--- some info from their website ---
To further characterize the extent of involvement and damage by Borrelia burgdorferi in humans, brain, spinal cord, and other tissues from people who have had Lyme disease at some time in their life are collected for current and future investigation at the NYS Psychiatric Institute.  People with a history of well-documented Lyme disease, which must include a positive Lyme blood test, should contact us at  .  It is most important that your next of kin or other individual who will be responsible for arrangements after your death be made aware of your wishes, provided with the Columbia Lyme Center contact information, and be informed that they should contact us immediately after your death.  Putting aside in a safe place your medical history and laboratory tests is very important as this information is necessary to review before we can conduct the post-mortem investigation. 
In the event that death has just occurred or is imminent, time is of the essence.  If this is the case, please call this emergency number 646-549-8880

Thank you for considering this most invaluable donation to further scientific understanding of the neuropathologic effects of Lyme disease. Please let others know about this,Jill
here.

Time Travel 22317

Posted on February 24, 2017 at 9:49 AM Comments comments (4)

TIME TRAVEL

22317



Good day all,

I woke this morning pondering the puzzle book with Metals as the subject of the project. In the puzzle was Manganese. I being a fairly deep thinker was quickly transported to another dimension of why we are here, Why we are not there, How can we get there, Are we already making that journey.

I slowly started with Manganese. First of all I was never with the understanding that Manganese is a metal. A mineral maybe. But the more I thought about this, Metal?/mineral, I found myself back to the creator recipe starter of iron. Complicated right? I have been chasing this ghost of Lyme disease for a number of years. In my search for answers, I have found some interesting statements and facts. I have found that no element stays the same over time as Iron, which is our earthling main building block for life. You say and think, WHAT, Yes Building block for life on our planet. I found this out by discovering that the disease that I have is not dependent on the one absolute of our planet. IRON. My disease depends on the Manganese its host can produce from the Iron after the Manganese natural is used up. Yes there is a Big study in there looming I am sure.

Then I am thinking, if all on this planet depends on Iron to survive, And we cannot survive as we are on another planet as we are. Then it makes sense to me that we will be transported to other dimensions and worlds as which we came. We have already been populating the universe with our kind but in recipe form. To assume we will survive the long grueling journey into the future in our earth suits will be wrong. We are being warmed up to the idea of planetary travel by possible time travelers coming here. This would bring my thought processes this morning full circle if we see our self as different forms than the form we have taken. If we can survive there as we humans do here. Then the recipe for life will develop the survivable form for that new home.

I am returning to my early theory that we will ride on the back of Photons as we likely already are and the main building block of our kind will prevail. It is interesting that most alien life forms in our media look at us as friends and not foes. Perhaps they already know we are them in another time.



All of this in one movement,



David R Thomas

Lyme Advocate

author, writer

Journey Through Challenge

and Lyme

Spirit of an object/A gift from Grandpa
------------------------------------------
The above is a new article and thought process that is backed by some science done sometime ago, that I had shared with you in my blog. Thank you for your time. David R Thomas
------------------------------------------
 

SWITCH IRON FOR MANGANESE .
April 3, 2013
Could change everything or could be a fluke, we will see.
 
Lyme Disease Bacterium Switches Out Iron For Manganese To Evade Immune System, Study Shows
 
 
By: Stephanie Pappas, LiveScience Senior Writer
Published: 03/22/2013 12:52 PM EDT on LiveScience
The bacterium that causes Lyme Disease substitutes manganese for iron in its diet, a new study finds. The pathogen is the first known organism to live without iron.  
This talent helps the pathogen evade the immune system, which often acts against foreign invaders by starving them of iron.
Lyme disease is transmitted by tick bites and can cause fever, fatigue, headaches and rashes. If not treated promptly with antibiotics, the disease can start to attack the circulatory and central nervous systems, causing shooting pains and numbness as well as cognitive difficulties.
Now, researchers have found that to cause Lyme disease, the bacterium Borrelia burgdorferi requires a large supply of manganese, which it uses instead of iron to make an important enzyme. The discovery could open new doors for the treatment of Lyme disease, said study researcher Valeria Culotta, a molecular biologist at the Johns Hopkins University Bloomberg School of Public Health.
"The only therapy for Lyme Disease right now are antibiotics like penicillin, which are effective if the disease is detected early enough," Culotta said in a statement. Penicillin acts by attacking the bacteria's cell walls, she said, but some forms of the bacteria don't have cell walls.
"We'd like to find targets inside pathogenic cells that could thwart their growth," Culotta said.
Researchers have known since 2000 that Borrelia doesn't have the genes it would need to make iron-containing proteins. But no one knew what they were using instead. Culotta and her colleagues used specialized equipment to measure metal-containing proteins in Borrelia, detecting metal content down to parts per trillion.
They found that the bacterium substitutes manganese for iron, particularly in defensive proteins that help protect the pathogen against the immune system.
The researchers now plan to map out all of the metal-containing proteins in Borrelia and plan to learn how the bacteria acquire manganese from their environment. The manganese mechanism may be a chink in the bacterium's armor that humans can exploit, Culotta said.
"The best targets are enzymes that pathogens have, but people do not, so they would kill the pathogens but not harm people," she said.
The researchers reported their findings today (March 22) in the Journal of Biological Chemistry.
 

GREAT GIFT FOR CHRISTMAS

Posted on December 24, 2016 at 10:54 AM Comments comments (1)
  Merry Christmas everybody. 
  There has been a great gift to you and your unborn descendants this year. This is a great step forward. I don't know if you have heard the good news yet. But we got the federal constitution to include Lyme language and Tick related disease issues in the new 21rst Century Cures Act. It is now law and must be dealt with. And Lyme advocates Doctors for and against, scientists must be present and represented at the group discussions. How about that. I would send you the link but you can get that at  The www.Lymediseaseassociation.org. Long way to go for solutions, but a start in my mind can now begin. 
Again MERRY CHRISTMAS and thank you to all of the great minds that made this happen.

From D&L Thomas and advocates

WILL YOU

Posted on December 16, 2016 at 10:31 AM Comments comments (0)
  WILL YOU, Will your doctor who claims to have all the answers. Set aside the arrogance bred ignorance that high strung and hard wired individuals such as many Brainiaks in our medical world possess, turn there mind to possibilities outside their training to help a loved one or someone outside their respective training. Or WILL YOU, Will your doctor take it upon themselves to learn the next real world of Auto immune diseases diagnostics and illnesses. Or will they say, that is not my specialty. You will have see see somebody else and sign that death warrant. The help is here. The education is here. The want too help in so many who can, is NOT here. God bless those who fight for care, justice and good science. For those who can not see. God help humanity.
 

LYMEE? ER or NO ER

Posted on October 16, 2016 at 3:57 PM Comments comments (0)
Here is a helpful share from a knowledgable Lyme teacher.

When do people use common sense?
There are times in the Lyme community when people become so accustomed to so many symptoms. Pains will come and go within days. Brain fog and neuropathy come and go within weeks and so many unusual things are experienced.
A lot of folks in Lyme groups will discuss all these things with each other, but when is it time to think that a symptom is ER worthy? Especially when folks in hospitals are so Lyme friendly.
I think what it comes down to is this:
1.      If you can’t breathe
2.      If your heart and chest hurt beyond reason
3.      If one of your limbs turn purple
4.      If pain and numbness of limbs occur without cause
5.      If you black out for no reason
6.      If you have sudden vision changes
7.      If for no reason you cannot walk
8.      Seizures for no reason
9.      Severe headache with numbness following it
10.  Localized severe swelling or limb or joints get hard
Bottom line is if anything occurs that is surprising and different from the symptoms you discuss with your LLMD or LLND then it is time to go to the ER.
It is hard to imagine going to an ER if you have had bad experiences with Doctors, but if you amend your files to reflect the type of treatment you want, (check with a lawyer that is Lyme aware to help with this).
Once a person has Lyme disease, it too easy to think every symptom is sprouting from the Lyme. It may be hard to recall the simpler times when these symptoms were ER worthy. It may be worthwhile to ask your LLMD or LLND what are ER worthy symptoms and a plan for such things so you are prepared for emergencies.
Well, I am off to another adventure. Hope all of your adventures are good!
Cheers,
Christina Murphy

Lyme Treatment Guidelines Update

Posted on September 25, 2016 at 6:10 AM Comments comments (0)

Hello All,

  I wrote a wonderful update this morning and low and behold I lost it somehow as my website locked up and poof. So here is a second try.
  I am honored to be asked to sit in on the Conference call with Ahope4lyme,inc (www.ahope4lyme.org) President Linda Wales for this session of the PALRN (Pennsylvania Lyme Resource Network) www.palyme.org. The PALRN organization has been ask to represent and develop the needed education arm for educating the people of Pa. There was a lot talked about that would be premature to report but there is a take away that I would like to share.
  When suspecting that you are suffering with a Tick related issue and your Doctor is planning on treating you. You can now say HERE, This is a site at the NGC (National Guidelines Clearinghouse)at: https://www.guideline.gov/summaries/summary/49320 where your doctor goes to get updates to treat different diseases. BUT since the IDSA guidelines were out of date by some 15+ years. The IDSA Guidelines that your doctor is use to has been taken down. Now the remaining new guidelines (excepted by the Lyme community and Lyme Literate community) are the only Lyme treatment guidelines there. Now the CDC is still pushing the old Lyme protocols of the IDSA and most big Hospitals and Giesinger is one of them and any affiliated ones. Still use the old out dated guidelines. So if you mention nicely to your doctor to study up on the new guidelines. He can go to, https://www.guideline.gov/summaries/summary/49320 . We in the Lyme community know the fallout that you will get by many and you should be vigilant in looking after your own health as most medical professionals are not there yet.

We also talked about the CME Lyme Conference coming to Philadelphia, Pa. In Dec. You can mention that and your doctor is always looking for CME's (Continued Medical Education) with credits. You will be abl to find more on the at www.ilads.org. Don't forget https://www.guideline.gov/summaries/summary/49320 .

Fox5 video Lyme & Reason

Posted on July 14, 2016 at 12:01 PM Comments comments (0)

Thank you all for tuning in to my site. I would like to share the Fox5 video special that needs to be shared with the public. Lyme Literate and Non literate. You need to know this. make special time to listen to Dr. Steven Philips and one of his clients. This is as true as it gets.

SPRING IS HERE

Posted on March 29, 2016 at 9:35 AM Comments comments (5)
Hello all,
It is another year so I thought I would refresh your memory for a great summer coming.
   I am here as I said to give you an idea of how to enjoy the out doors this year if you are rightfully concerned for your health and your family's health. Tick problems and Lyme disease has become a very important issue in the last few years. I feel this is just the beginning and if we don't take heed into this threat, it can be a very sad health issue for you and your family. But all is not lost if you learn to play the game as they say. You need to learn to protect yourself and learn the different ways that put you in jeopardy of tick born illnesses such as lyme disease and it's different co-infections such as Babesia, Ehrlichiosis, candidia, bartonella. There are different recipes on the Internet by looking up Natural Tick Repellent in your search bar. I understand it works well as long as it is followed correctly. I like the natural recipes that include aloe vera gel, rose geranium, and lavender. You should use this abundantly and cover yourself very well with this natural repellent.
   Then there are those over the counter tick repellents that work well if you don't mind a little deet that works well. These repellents need to be understood before use. There are clothing products with Permethrin that is recommended for those outdoor people who are out in tick territory often like campers, hunters, woodsmen and the like. Permethrin also goes by the name Permanone and Duronon. This product is designed for clothing only.
   Then there is my favorite: DEET products for us guys and my family who don't go out into it that often or go out in short trips and not in to hiking like some, who don't get out that often an would like some extra, easy, spritz here and there kind of thing. You should make sure you spritz your legs, arms, neck, hair line. I like to fish and take my grandkids. So this is what I use. If I were to take them out often, I might chose the natural repellent. According to the sheet I have read up on about Deet. Adults should not use a deet product with no more than 30% deet, and children can use up to 30% deet according to age, size. Infants under 2 months of age should not be exposed to deet. There is much more you can learn about preventing Tick-borne disease by typing this into your browser or if you prefer, your representative office offers some very good brochures for the outdoors and protection of your family.
   Then there is the clothing issue. You are suppose to cover up everything when your out and about in the woods and trails to protects yourself. Take it from me or any of my hunting friends, it makes sense to protect yourself. But then there are those of us who are ten foot tall and bullet proof who will prevail no matter what the cost. Take it from me and my wife who both suffer greatly with lyme disease. We are no longer bullet proof.
  I am including my informative Homemade tick tube video for your interest. Have fun. https://youtu.be/_RIxPBNaA80
   You all have a wonderful spring and summer and maybe I will see you out there somewhere enjoying what nature has to offer. Remember if you take the precautions to prepare for the outdoors, you will appreciate everything it has to offer. David R Thomas

LYME TREATMENT GUIDLINES

Posted on January 23, 2016 at 12:53 AM Comments comments (8)

  I just tried to click on Ilads link in NGC (National Guidelines Clearinghouse) and it said it was presently unavailable. Go figure. Couldn't find ilads or natural treatment guidelines at all. BUT I played around a bit. I came to the IDSA guidelines. Stay with me.
http://www.ahrq.gov/research/findings/factsheets/errors-safety/ngc/national-guideline-clearinghouse.html 
  ===================
Then in that search bar at NGC print ilads guidelines/lyme and you will go to the ilads guidelines
  ===================
I also look up Holistic Guidelines/lyme and naturopathy guidelines/lyme and no results
====================
Then I search " natural guidelines/lyme " and walla I came to Natural guideline/lyme  for NGC.
====================
Do all searches from the NGC website